Friday, October 16, 2009

sweet Jack

In the past week, we have had some appts for Jack- all referrals from the geneticist. We need to find out more about his condition, so we have been sent to various specialists to get more information.

The first one was a mixed review. At his otolaryngologist appt, they determined that is hearing is within normal levels!!! YEA!!!!! They think that he failed his 3 previous hearing tests because he had fluid in is ears, which was later absorbed by his body. The development of fluid isn't abnormal. He might have it happen more than others because of his cilia condition. But I was thrilled that my son could hear. One hurtle down.

But while we were there, the otolaryngologist (I don't remember his name- shame on me!) he said he thought Jack's mucus looked TOO THICK. I thought, 'Okay, thanks for sharing.' Then he said he needed to scope him. So he did, and poor Jack did NOT like that one bit. He concluded that mucus is thicker than normal (a word I have come to despise), and is related to the cilia condition. One more unfortunate box to check when pursuing testing. But it could be worse.

We also went to the abdominal ultrasound determine presence, location and size of spleen, kidney and liver size, as well as stomach and intestine info. We don't know anything concrete yet. I went into the appt a little confused. I was not aware that the NICU team determined that he DID have a spleen. So I thought we were just trying to verify if he had one. (Jeremiah says he told me this back then, but honestly, so much was said, that I forgot even the good news.) There were a couple very specific things we were looking for-- size of spleen, location, whether it was malrotated (like everything else is for Jack), and whether there was just one spleen.

I will share when we have confirmed things more. I continue to pray and feel hopeful that because our son is growing and happy and seemingly fine, he will be fine.

Oh, and if I haven't already told you-- Jack is taking steps!!! He doesn't get too far. We all cheer him on and praise him, and then, for reasons unbeknownst to us, Jack thinks it is hysterical to plop down on his butt. So, the routine goes, step 1- smile, step 2 - mischevious grin, step 3- his eyes twinkle, and then he sits, and starts laughing at us. Like, 'You silly fools, I am not a circus monkey performing tricks.'

He also has 6 teeth, with a couple more coming in. He is eating food and we've already discovered he is-  like the other boys in the family- a true meat lover.

Here are some pictures of the past week or so!

a very muggy day of t-ball

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